Little Boy Blue

Christopher is still in the Special Care Nursery. He first went there for low blood sugar, being that he was born at 37 weeks, he is considered late pre-term. I guess that means he is not a preemie but not completely full term? Something like that. Anyway, when he went to the nursery they noticed that he has some weakness on the left side of his face. He doesn't always close his left eye and when he cries, the left side of his mouth droops a little. The neonatologist (Dr. Sosa) also said it looks like that side of his tongue is also weak. They had the director of pediatric neurology (Dr. Chez) check him out yesterday and he thought it could be Mobius Syndrome. Christopher has bilateral club foot. This particular syndrome that they are looking at has facial nervous system problems and also club foot. Club foot is super easy to treat with casts initially and then braces. It's just to get his little feet to turn out the right way.

Christopher will have an MRI tomorrow. They have also drawn blood and will do some genetics testing that is even more extensive than the amnio we had in July. The syndrome that the neurologist is looking at is a genetic syndrome that can be competely random... nothing we did to cause it. Dr. Sosa is not 100% convinced that Christopher has that syndrome, so we are hopeful that the facial issues are something he will grow out of or that can be helped with physical therapy.

The hardest part of him being in the SCN is that I'm not yet breast feeding him, but I am pumping and we will try to get him to breast feed as soon as my milk comes in. He is getting what he needs through supplements right now, at least. And this helps with his blood sugar as well.

I just spoke with a social worker (came to make sure I was handling everything ok and not going to jump out the window). It was really nice of them to send her. I think she expected me to be bawling in front of her. She would sit there and there were these pauses in the conversation, which I knew meant she was giving me time to say what I needed to say. All I can say is *AWKWARD*.

Also, Dr. Sosa just came by and let me know that the MRI is for sure tomorrow at 3pm. He also is waiting for the geneticist to get back into town so that he can evaluate Christopher. I like Dr. Sosa. Not awkward. The only bummer was he just said the baby isn't eating enough ounces yet. :( So they may have to tube feed him. But more positively, possibly his IV can come out soon.

So that's our little man. I'm hoping he can be home soon. Dr. Sosa didn't know when. And said again that it may not be Mobius Syndrome since Christopher can open and close his eye better now.

I go to Christopher's feedings every time I get a chance. He is such a sweet little bundle I just want to hold him all the time, but he also needs time to rest peacefully. I'll try to post pictures as I can...